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One in Thousands

One in Thousands

von Dorrit Barrett
Softcover - 9788743030768
22,90 €
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Beschreibung

Ehlers-Danlos Syndrome is probably the most overlooked physical handicap in the world. A genetic hiccup changes your body completely, and as you look "normal" , nobody understands why you can't BE normal. Not even your doctor, who may have forgotten all she ever heard about the rare syndrome. The author has fought for a "normal" life for 77 years. It didn't become normal, but both interesting and meaningful in spite of her invisible enemies: Her own shame of not being like everybody else, and an environment - including the medical world - that was convinced her problems "were all in her head". Her kind of EDS, the classic, only appears in 1 in 20.000 people. Some believe as few as 1 in 40.000. Other variations - there are 13 in all - are far more common. You may have heard of people who suffer from one of them. You may even know one.

- my life as a rarity

Details

Verlag BoD – Books on Demand – Dänemark
Ersterscheinung 26. April 2023
Maße 21.5 cm x 13.5 cm x 1.5 cm
Gewicht 286 Gramm
Format Softcover
ISBN-13 9788743030768
Auflage 1. Auflage
Seiten 206

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