{"product_id":"one-in-thousands-von-dorrit-barrett","title":"One in Thousands","description":"Ehlers-Danlos Syndrome is probably the most overlooked physical handicap in the world. A genetic hiccup changes your body completely, and as you look \"normal\" , nobody understands why you can't BE normal. Not even your doctor,  who may have forgotten all she ever heard about the rare syndrome.\n\nThe author has fought for a \"normal\" life for 77 years. It didn't become normal, but both interesting and meaningful in spite of  her invisible enemies: Her own shame of not being like everybody else, and an environment - including the medical world - that was convinced  her problems \"were all in her head\".\n\nHer kind of EDS, the classic, only appears in 1 in 20.000 people. Some believe as few as 1 in 40.000. Other variations  - there are 13 in all - are far more common. You may have heard of people who suffer from one of them. You may even know one.\u003cdiv class=\"aw-variant-hidden-subtitle-div\" id=\"aw-variant-subtitle-9788743030768\"\u003e\u003ch3\u003e- my life as a rarity\u003c\/h3\u003e\u003c\/div\u003e","brand":"Autorenwelt Shop","offers":[{"title":"Softcover - 9788743030768","offer_id":46661698781509,"sku":"9788743030768","price":22.9,"currency_code":"EUR","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0940\/0622\/files\/0cfd1734-03a5-43a7-96ab-b13cc1b7ddc9.jpg?v=1763535365","url":"https:\/\/shop.autorenwelt.de\/products\/one-in-thousands-von-dorrit-barrett","provider":"Autorenwelt Shop","version":"1.0","type":"link"}